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LHON Conference group photo.

LHON
Community

Terry lost vision at 53.
Terry lost vision at 53.

Connections to help you thrive

Link to Calendar of Events page

1. LHON Calendar of Events

Find out about upcoming LHON Zoom events and conferences.

2. LHON Connect Zoom Events

Link to Zoom Events page

Connect with the LHON community via Zoom to share your LHON journey and learn from others.

3. LHON Conferences

Learn about upcoming LHON Conferences and find a link to recordings of prior conferences.

Link to LHON Conferences page

4. LHON Social Media Groups

Find LHON groups on social media to connect with others who are also charting their LHON path.

Link to Social Media Groups page

5. LHON Global Organizations

Link to Global Organizations page

Connect with an LHON organization located near you for local information and support.

6. Mitochondrial and Rare Disease Organizations

Link to Mito and Rare Disease Orgs page

Resources and organizations that provide guidance specific to mitochondrial and rare diseases such as LHON.

7. LHON Journey Videos

Link to Journey Videos page

While each LHON story is unique, there are commonalities to the LHON journey.

8. LHON Media Stories

Link to LHON Media Stories page

Many individuals affected by LHON have been featured in the news, such as in these TV shows, videos, and articles.

9. LHON Videos, Blogs, and Books

Link to Videos, Blogs, and Books page

Several people have shared their LHON experiences in videos, blogs, and books.

Julie and Jessica both lost vision at 26.
Jessica lost vision at 26.
Julie lost vision at 26.
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