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LHON
Community

Connections to help you thrive

Link to Calendar of Events

1. LHON Calendar of Events

Find out about upcoming LHON Zoom events and conferences.

2. LHON Connect Zoom Events

Connect with the LHON community via Zoom to share your LHON journey and learn from others.

Link to Zoom Evens

3. LHON Conferences

Learn about upcoming LHON Conferences and find a link to recordings of prior conferences.

Link to Confeence

4. LHON Social Media Groups

Link to Social Media Groups

Find LHON groups on social media to connect with others who are also charting their LHON path.

5. LHON Global Organizations

Connect with an LHON organization located near you for local information and support.

Link to Global Organizations

7. LHON Journey Videos

While each LHON story is unique, there are commonalities to the LHON journey.

Link to Journey Videos

8. LHON Media Stories

Many individuals affected by LHON have been featured in the news, such as in these TV shows, videos, and articles.

Link to LHON Media Stories

9. LHON Videos, Blogs, and Books

Several people have shared their LHON experiences in videos, blogs, and books.

Link to Videos, Blogs, and Books

6. Mitochondrial and Rare Disease Organizations

Link to Mito and Rare Disease Orgs

Resources and organizations that provide guidance specific to mitochondrial and rare diseases such as LHON.

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