Get Involved
Find your place with our community
A warm WELCOME to those newly diagnosed with LHON. Here are some ways you can learn more and make a difference right away.
No matter how you connect to LHON, we encourage you to register in our LHON Contact List!
If you are an unaffected or affected carrier of an LHON mutation, please consider joining our global registry to grow the LHON patient participants and encourage research on this rare disease.
Choose the giving option that resonates most with you, helping to advance research, treatments, and support for LHON patients worldwide.
Learn how to get involved, creating awareness and fulfilling our mission of caring for our LHON Community while working to promote the science towards a cure.
View recordings of our annual LHON Community Update as discussed at the annual LHON conferences.
Help us fund research and support for LHON. It takes everyone, working together, to raise funds for cutting-edge science to benefit LHON.
