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Living with LHON

Resources to help you adapt

Link to a Adjusting to LHON page.

Losing central vision is scary. Figuring out what to do when it happens is confusing, and there are many issues to address all at once.

Link to LHON and Emotions page.

It’s important for each person whose life is being impacted by LHON to work through the various stages of grief and not get stuck along the way. 

Link to Mobility, Transportation, and Home Modifications page

When people affected by LHON begin losing vision, they wonder how they’ll manage daily life. 

Link to Assistive Technology page.

There is an extensive variety of assistive technology available for people with low vision.

Link to Financial Matters page.

Resources to lessen the financial impact of LHON can be found here.

Link to LHON and Education page.

Learn about resources for navigating education for those affected by LHON.

Insights to successfully manage employment with LHON.

Link to LHON and employment page.

Information about assistance remaining in or entering the workforce. 

Link vocational rehabilitation page.
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Link to Sports and Fitness page.

Many sports and fitness activities can be done successfully with LHON vision. Learn how. 

Link to Travel and Leisure page.

Tips on travel and leisure activities.

Link to Vision Loss-Related Resources and Organizations page.

Resources and organizations that provide guidance specific to vision loss.

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