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Living with LHON

Resources to help you adapt

Losing central vision is scary. Figuring out what to do when it happens is confusing, and there are many issues to address all at once.

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It’s important for each person whose life is being impacted by LHON to work through the various stages of grief and not get stuck along the way. 

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When people affected by LHON begin losing vision, they wonder how they’ll manage daily life. 

There is an extensive variety of assistive technology available for people with low vision.

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Resources to lessen the financial impact of LHON can be found here.

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Learn about resources for navigating education for those affected by LHON.

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Insights to successfully manage employment with LHON.

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Information about assistance remaining in or entering the workforce. 

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Many sports and fitness activities can be done successfully with LHON vision. Learn how. 

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Tips on travel and leisure activities.

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Resources and organizations that provide guidance specific to vision loss.

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