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Living with LHON Conference panel.

Living with LHON

Chris lost vision at 43.
Chris lost vision at 43.

Resources to help you adapt

Losing central vision is scary. Figuring out what to do when it happens is confusing, and there are many issues to address all at once.

Chris lost vision at 43.

It’s important for each person whose life is being impacted by LHON to work through the various stages of grief and not get stuck along the way. 

Link to LHON and Emotions page.
Link to Mobility, Transportation, and Home Modifications page

When people affected by LHON begin losing vision, they wonder how they’ll manage daily life. 

There is an extensive variety of assistive technology available for people with low vision.

Link to Assistive Technology page.

Resources to lessen the financial impact of LHON can be found here.

Link to Financial Matters page.

Learn about resources for navigating education for those affected by LHON.

Link to LHON and Education page.

Insights to successfully manage employment with LHON.

Link to LHON and employment page.

Information about assistance remaining in or entering the workforce. 

Link vocational rehabilitation page.
Gregory lost vision at 19
Gregory lost vision at 19.
Evan lost vision at 22.
Evan lost vision at 22.

Many sports and fitness activities can be done successfully with LHON vision. Learn how. 

Link to Sports and Fitness page.

Tips on travel and leisure activities.

Link to Travel and Leisure page.
Link to Vision Loss-Related Resources and Organizations page.

Resources and organizations that provide guidance specific to vision loss.

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