LHON Videos, Blogs, and Books
Several people have shared their LHON journeys in videos, blogs, and books.
Videos and Blogs
“Blindsided” is an award-winning documentary that captures the brutally honest thoughts and emotions of the Hara family and friends after learning 11-year-old Jared was going blind due to LHON.
Books
Losing Vision, Not Dreams: Reflections on My Teenage Years is a book written by Noah Malone. He shared this commentary about his book, “When I was 13, I was diagnosed with Leber’s Hereditary Optic Neuropathy (LHON), a rare genetic disease that leads to central vision loss. My vision quickly deteriorated from 20/20 to 20/600 and 20/400 in my left and right eyes, respectively. I was a rising track and field star, and suddenly, I was legally blind.”
If you know of any relevant books, videos, or blogs that are not listed here, we would like to add them to the list! Please send an email to connect@lhon.org, and we will include any currently not represented. Thank you for helping us to keep the resources as current and representative as possible.
