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Register in the Contact List

No matter how you connect to LHON, we encourage you to register in the Contact List below. Your information will be used to communicate research and clinical trial opportunities, to share educational and advocacy resources, as well as to help families connect with each other. 

Your information will never be shared for commercial purposes. If you are unsure if you are already listed or need to make changes to your contact record, just email us at connect@lhon.org.

Reach us by mail:

LHON Collective
PO Box 3680
San Diego, CA 92163
USA

Reach us by email:

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