Mitochondrial and Rare Disease Organizations
Since LHON is a mitochondrial disorder and a rare disease, it can be helpful to learn more about both.
LHON is very different from most mitochondrial diseases, which often onset in childhood and usually affect several systems of the body at once. Some mitochondrial diseases are life-shortening, which is not the case with LHON. Researchers studying mitochondrial disease are studying the same molecular issues as LHON, but the symptoms can be very different. Below are links to mitochondrial organizations around the world that focus on supporting patients with mitochondrial diseases and funding mitochondrial research.
LHON is also a rare disease, which is important because it affects research and treatment efforts. Below are links to rare disease organizations around the world that focus on supporting patients with rare diseases and funding rare disease research.
If you know of an organization not listed here, please email connect@lhon.org so the list can be updated. Thank you for helping us keep our mitochondrial and rare disease organizations as current and representative as possible!
