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LHON
Answers to common questions
The journey to an LHON diagnosis can be long and frustrating. Here are some tips.
Genetic testing determines if someone carries an LHON mutation.
A genetic counselor can be of significant assistance.
Being diagnosed with LHON means that you suddenly know that everyone on your maternal bloodline very likely carries the same LHON mutation.
It’s helpful to find a leading center for LHON patient care and current research.
Learn what LHON experts recommend and discourage as medical approaches to this rare disease.
Individuals who carry an LHON mutation may benefit from discussing certain actions with their health care providers.
Most LHON experts suggest that people carrying an LHON mutation avoid environmental factors that could create additional mitochondrial stress.
Preserving as much vision as possible makes living with LHON easier.
