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LHON

Answers to common questions

1. Getting to a Diagnosis

Link to the Getting to a Diagnosis webpage

The journey to an LHON diagnosis can be long and frustrating. Here are some tips.

2. Genetic Testing

Link to Genetic Testing page

Genetic testing determines if someone carries an LHON mutation.

3. Genetic Counseling

Link to Genetic Counseling page

A genetic counselor can be of significant assistance.

4. Maternal Bloodline Inheritance

Being diagnosed with LHON means that you suddenly know that everyone on your maternal bloodline very likely carries the same LHON mutation.

Link to Matenal Bloodline inheritance page

5. Patient Care

It’s helpful to find a leading center for LHON patient care and current research.

Link to Patient Care page

6. Treatments to Consider and Those to Avoid

Link to Treatments to Consider and Those to Avoid

Learn what LHON experts recommend and discourage as medical approaches to this rare disease.

7. Proactive Considerations

Link to Proactive Considerations page

Individuals who carry an LHON mutation may benefit from discussing certain actions with their health care providers.

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8. Factors That May Impact the Risk of Becoming Affected

Link to Factors That May Impact the Risk of Becoming Affected

Most LHON experts suggest that people carrying an LHON mutation avoid environmental factors that could create additional mitochondrial stress.

9. Lifestyle Choices

Link to Lifestyle Choices page

Preserving as much vision as possible makes living with LHON easier.

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