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Jasleen lost vision at 16.
Jasleen lost vision at 16.

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LHON

Answers to common questions

Kris lost vision at 55.
Kris lost vision at 55

1. Getting to a Diagnosis

The journey to an LHON diagnosis can be long and frustrating. Here are some tips.

Link to the Getting to a Diagnosis webpage

2. Genetic Testing

Genetic testing determines if someone carries an LHON mutation.

Link to Genetic Testing page

3. Genetic Counseling

A genetic counselor can be of significant assistance.

Link to Genetic Counseling page

4. Maternal Bloodline Inheritance

Being diagnosed with LHON means that you suddenly know that everyone on your maternal bloodline very likely carries the same LHON mutation.

Link to Maternal Bloodline inheritance page

5. Patient Care

It’s helpful to find a leading center for LHON patient care and current research.

Link to Patient Care page

6. Treatments to Consider and Those to Avoid

Learn what LHON experts recommend and discourage as medical approaches to this rare disease.

Link to Treatments to Consider and Those to Avoid

7. Proactive Considerations

Individuals who carry an LHON mutation may benefit from discussing certain actions with their health care providers.

Link to Proactive Considerations page
Joey lost vision at 15
Joey lost vision at 15.
Mark lost vision at 20

8. Factors That May Impact the Risk of Becoming Affected

Link to Factors That May Impact the Risk of Becoming Affected

Most LHON experts suggest that people carrying an LHON mutation avoid environmental factors that could create additional mitochondrial stress.

9. Lifestyle Choices

Preserving as much vision as possible makes living with LHON easier.

Link to Lifestyle Choices page
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