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LHON Conferences

2027 LHON Conference in San Diego, California

April 30 - May 2, 2027

Overview

We are excited to welcome LHON families, friends, and supporters to register for the 2027 LHON Conference!  The conference kicks off on Friday, April 30, at 6 pm with a Welcome Reception.  Saturday, May 1, includes a full day of informative sessions and roundtable discussions.  Sunday, May 2, features a half day of sessions and discussions, concluding at 12:30 pm.  While the conference officially ends on Sunday afternoon, many attendees traditionally stay one more night to continue connecting with new and old friends.  The hotel offers a comfortable pool area and spacious lounge, providing the perfect setting for the conversations and connections that make our LHON community so special.

Who Should Attend?

Whether you are affected by LHON, an unaffected carrier, supporting a loved one, or simply seeking to connect with others who understand the LHON journey, we hope you'll join us for a weekend filled with education, real stories, updates, support, and conversations with others who truly get it.

Register Now For The Best Rate!

Register NOW at the Early Bird Rate of $225 per person through December 31, 2026! The rate will increase to $250 from January 1, 2027 through March 31, 2027. The Late Rate of $275 will be in effect from April 1, 2027 through the event.  

Hotel Reservations

The conference will be held at the DoubleTree by Hilton Hotel San Diego - Mission Valley. The group rate is $219 per night, plus fees and taxes. We expect all rooms in the LHON Conference room block will be booked, so we encourage you to make your hotel reservation NOW. If space is available, this rate extends three days before and three days after the conference, giving you the opportunity to extend your conference trip into a San Diego vacation. While the cutoff date for this room rate is April 9, 2027, we expect the room block to fill well before then.  You can book by using the link below or by calling (800) 222-8733 and using the 3-letter Group Code: LHO.  

View recordings from prior LHON Conferences

View YouTube recordings from prior LHON Conferences.

We can’t wait to welcome you to San Diego in 2027!

Other Conferences

United Mitochondrial Disease Foundation logo

Each year, UMDF’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and the patients we serve. With over 700 attendees representing almost every state in the U.S. and more than 15 different countries, the Conference is recognized as the world’s preeminent event for mitochondrial disease.

Mitochondrial Medicine Conference provides an international stage for leaders in mitochondrial medicine and offers programs to inspire the next generation of researchers. You will learn about the latest developments in the field of mitochondrial medicine, including industry advancements, potential treatments, therapies and cutting edge research. The event also gives the scientific communities the unique experience of engaging with affected patients to better understand symptoms and work faster towards a cure.

LHON Canada

September 26, 2026

Come for a day of information, discussion and more about Leber Hereditary Optic Neuropathy.​

Venez participer à une journée d'information, de discussion et bien plus encore sur la neuropathie optique héréditaire de Leber.

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