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Our Team
Please meet current leaders of LHON Collective initiatives. We are all honored to serve this organization and dedicated to working together to fulfill its mission.
Select any name to open a window on this page where you can read their bio and inspiration for volunteering and working with LHON Collective.
If there is a specific individual you would like to contact, please send an email to connect@lhon.org.
Initiative Leaders
Community Connect
Jessica Loomer
Community Connections Database, Education
Jerrie Lore
Community
Outreach
Lissa Poincenot
Conference, Social Media
Maria Johnson
Development /
Fundraising, Scientific Data Collection
Malinda Marsh
Development / Fundraising
Uli Heine
Education
Molly Garrone
Global Community Justin Keenan
Global Community Julie Poincenot
Medical and
Science Advocacy
Paul Lore
Medical and
Science Advocacy
Chris Marsh
Project
Management
John Coughlin
LHON Connect Demographics
Affected at 60+
Howard Sumner
Affected Teens, Affected Young Adults
Jessica Loomer
Affected Teens, Affected Young Adults
Xavier Marsh
Affected
Women
Abigail Graf
Dads of
LHON-Affected
Jim Tolve
Dads of
LHON-Affected
Tony Wright
Moms of
LHON-Affected
Hope Gelbach
Moms of
LHON-Affected
Rashell Lewis
Spouses or Partners of
LHON-Affected
Justin Keenan
Spouses/Partners of LHON-Affected
Jerrie Lore
LHON Sisterhood
Scarlet Keolanui-Dreifuss
LHON Connect Symptoms or Mutation
Charles Bonnet Syndrome
Paul Lore
LHON Live!
Jessica Loomer
LHON-MS
Marci Belk
LHON Plus
Josie Kosack
LHON Plus
Lisa Thompson
3460 Mutation
Patrick Doolittle
LHON Connect Topics
Assistive Technology
Sara Nappi
Navigating Education
Courtney Dignan
Navigating Employment
Zak Turner
Parenting with LHON
Maria Johnson
Parenting with LHON
Chris Lawton
LHON Connect US Regions
Northeast
John Knox
Northeast
Howard Sumner
Northeast
Jim Tolve
Northeast
Mary Tolve
Southeast
Brian Haas
Midwest
Jenn Malecha
South Central
Donna Basse
West
Bob Banks
West
Patrick Doolittle
Southeast
Jessica Knight
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