Other Vision Issues
Some individuals with LHON vision loss experience a phenomenon known as Charles Bonnet Syndrome, where they see phantom images. This LHON and Charles Bonnet Syndrome video provides an overview.
Many people affected by LHON experience photophobia/sensitivity to light and glare. Specialized glasses, such as those by Axon Optics, may be used indoors to limit the impact.
Some individuals experience a worsening of vision during exercise and in heat. This is temporary and is known as Uhthoff Phenomenon.
It’s important for individuals with LHON vision loss to continue having regular eye exams over time. Other eye conditions can develop in those affected by LHON just as in others, and losing any of the vision that remains after LHON onset can be devastating. Treatment for glaucoma or other eye conditions is available if detected early, so regular eye exams are important.
