Vision Loss-Related Resources and Organizations
It can be helpful to find resources and organizations about vision loss that provide useful guidance when someone is affected by LHON.
Resources for the blind are often targeted to those who either lost vision as children, or at an older age. LHON can onset at any age, so the needs are different for each person affected. Those affected by LHON may feel that they don’t fit in at facilities for the blind since most people there are much younger or much older. People who were once fully sighted and lost vision due to LHON have a different sense of the world than those who have lived without vision since childhood or those who lose sight after completing school, college and career. Resources created by individuals affected by LHON tend to be of particular value to others similarly affected. A list of blogs and podcasts by and about LHON can be found in this LHON Podcasts, Blogs and More video.
Check out additional vision loss resources reviewed in this video.
These organizations are for, by and about people with vision loss. Some of these organizations have an annual conference and local chapters.
There are also vision loss organizations that support research and patient support for vision loss diseases including LHON.
Parents with a child losing vision to LHON may find help from the following resources.
